In a close collaboration Partisia and the Data for Good foundation aims to change the way we’re working with sensitive information, in an encrypted and secure way, where the individual has full transparency and control of how their data is being used. All usage and sharing of data must only be done after explicit consent, through a platform where the user can do this easily.

For Partisia and the Data for Good foundation, this agenda is highly relevant. 

The importance of Informed Consent

The collection and analysis of data have always been essential for progress and innovation. This allows individuals to make decisions based on the most informed basis, especially in fields such as the health industry. Data is a critical asset driving the development of new medicines and understanding of e.g. side effects.

In today's digital age, how we collect, utilise, and store data has become more important than ever, raising ethical concerns that were previously less significant. Therefore, the importance of informed consent and establishing proper frameworks and platforms to protect data while ensuring precise consent is paramount.

Informed consent is crucial, especially considering the meaning of "informed." It ensures that the person giving consent fully understands how their data will be used, in a completely transparent manner.

The controversy surrounding the usage of blood samples highlights the critical need for informed consent in research involving sensitive genetic data. Using personal genetic information without explicit consent undermines trust in medical research and violates individuals' privacy rights. This in the end means that we are more reluctant to share our data, also when it can be for the public good and better services.

Partisia addresses these challenges by providing solutions that ensure secure data sharing through advanced encryption and privacy-preserving technologies. The Partisia Confidential Computing platform uses Multiparty Computation (MPC) to allow researchers to analyse sensitive datasets without compromising individual privacy. This way we can get the best of both worlds: None of us needs to reveal private data, but we can still produce the data driven insights.

Additionally, My Data Activation facilitates precise consent for patients to use their health data, ensuring compliance and transparency and most importantly trust.

By leveraging State-of-the-art technologies, Partisia and DfG ensures that sensitive data is handled responsibly, building public trust and upholding privacy rights. What we at Partisia provide with technology, DfG matches with its neutral ‘good governance model’.

In short, both informed consent and the technologies developed by Partisia play crucial roles in ensuring ethical standards, enhancing privacy and security, and fostering trust in medical, research, and digital environments.

At Partisia we have spent more than a decade researching and developing a product that empowers individuals as citizens, patients and customers and facilitates a new way for activating sensitive and personal data. Read more about our My Data Activation.

Read more about our partners at Data for Good.